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A proposed redesign of the federal government’s annual health survey would result in significant undercounting of Americans with intellectual and developmental disabilities, according to advocates for the vulnerable population.
The National Health Interview Survey has historically undercounted people with disabilities, but the changes are a “head-scratcher,” said Katy Neas, CEO of The Arc, an advocacy group. “If we don’t have the government as a trusted source of data, asking questions about real people and what their real experiences are, we’re never going to get better [health outcomes],” she said.
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